Usher Syndrome Coalition
The Usher Syndrome Coalition’s mission is to raise awareness and accelerate research for the most common genetic cause of combined deafness and blindness. The Coalition also provides information and support to individuals and families affected by Usher syndrome.
The Usher Syndrome Coalition aims to identify and connect the 400,000+ people living with Usher syndrome worldwide with researchers, vital information, and others in the Usher syndrome community. By bridging the gap between researchers and those impacted, we will expedite the full understanding of Usher syndrome and the development of treatments for the associated vision, hearing and vestibular issues that are the hallmark of Usher syndrome.
Website: https://www.usher-syndrome.org
Email: info@usher-syndrome.org
Phone: (800) 946-9203
Representative: Nancy O’Donnell and Monica Pruitt
Representative Email: n.odonnell@usher-syndrome.org; m.pruitt@usher-syndrome.org
Address: 9 Cornerstone Square Suite 400-224 Westford, MA 01886
Service Area: International
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