Usher Syndrome Coalition
The Usher Syndrome Coalition is the only organization in the world working to find and support every individual and family living with USH, regardless of where they live, what type of USH they were born with, or their method of communication. Our mission is to raise awareness and accelerate research while providing information and support to individuals and families affected by Usher syndrome. We strive to be the most comprehensive resource for the Usher syndrome community, bridging the gap between researchers and families.
Website: https://www.usher-syndrome.org
Email: info@usher-syndrome.org
Phone: (800) 946-9203
Representative: Nancy O’Donnell
Representative Emails: n.odonnell@usher-syndrome.org
Address: 9 Cornerstone Square Suite 400-224 Westford, MA 01886
Service Area: International
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